6 Month Update...
I went to the clinic yesterday, and here's the numbers.
My Vital Lung Capacity is at 4400ml or 76% and remains unchanged from my February visit. (good)
Blood Pressure - 125/76 (good)
Heartrate - 93 (slightly elevated due to HOT looking nurse (hehe))
O2 Sats - 97 (very good)
CO2 - 40 (normal)
Weight - 162lbs (down 4lbs from March)
The doctor's were pleased with my results as they were pretty well identical to my February visit and yet this time, both doctors seemed (to me) to be pushing for me to get a Feeding Tube and/or medication(s).
I can get meds for laughing, crying, muscle cramps, excess saliva, headaches, muscle aches and the list goes on...
I think the doctor's wanna Poison me rather than fix me!
I said NO! to everything offered.
On that note...
I've been reading an awful lot about Lyme disease and ALS being connected in alot of cases and with some of the (US)ALS Drug Trials involving antibiotics used to treat Lyme disease...hmmm
So I had a Lyme test (ELISA) done a couple of weeks ago and it came back negative...D'oh!
I'm not looking to change my diagnosis from ALS to Lyme disease.
I've accepted that.
I'm more curious about a possible connection between the two diseases.
When I spoke to my neurologist yesterday, he's gonna refer me to an 'Infectious Disease Specialist'.
His thoughts were "I'm not an (Lyme Disease) expert and I can't offer you anything to cure you of ALS...so let's refer you to a specialist and explore this further."
Overall I'd hafta say...Physically, Emotionally, and Spiritually, I'm doing very well.
I'm still doing 'physio' 5x a week and have started adding weights to the routine.
When I first started doing these exercises, I would/could do 10-15 reps of each exercise and 'physio' would last about 30mins.
Now I'm doin' 100-200 reps (depending on the exercise) and I can go for 1.5-2 hours.
With the weights, it'll certainly add a more of a challenge (hmmm...I'm thinkin' 6 pack abs and buns of steel).
Emotionally I'm feeling good and lookin' forward to the two weeks of summer that Calgary has.
While certain muscle groups (speech and walking mostly) have deteriorated due to my condition...
I hafta remind myself that:
- Aside from one '24 hour Flu', I haven't been sick since October (not even a minor cough/cold).
- My leg strength and overall stamina have improved in the last month or two.
- I'm completely Med FREE.
- I feel good.
I was surfin' the net the other day...
And found something that me look at this disease in a WHOLE new way.
Maybe a cure for ALS is as simple to find as looking no further than the name.
ALS – Amyotrophic Lateral Sclerosis is from the Greek language meaning...
- "A" means no or negative.
- "Myo" refers to muscle, and
- "Trophic" means nourishment
i.e. "No muscle nourishment."
When a muscle has no nourishment, it "atrophies" or wastes away.
"Lateral" identifies the areas in a person's spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region
ALS is a NEURODEGENERATIVE DISEASE
A neurodegenerative disease is a disorder caused by the deterioration of certain nerve cells (neurons). Changes in these cells cause them to function abnormally, eventually bringing about their death.
A CELL is the basic microscopic unit of all living beings. The cell produces energy and uses it to build all the substances necessary for its life. Some living organisms exist only as a single cell. This is the case for bacteria, as well as certain animals and plants. An average sized man contains from 60 to 100 trillion cells. Cells nourish themselves, produce energy, exchange information with their neighbors, multiply, and eventually die when their time has come.
Glycontrition is about cellular nutrition.
ALS is about cellular(muscle) malnutrition.
Simplistic...Yes, my theory is just that.
Effective Treatment...Only time will tell.
I'm going to continue Mega-Dosing the Glyconutrients and continue this journey.
It's just so crazy, it may work!